It is currently 2:41 AM. David is asleep, and Ellavie is resting soundly in the crib beside my chair. I can hear the buzzing of machines, the water moving through the heater, and the faint chatter of nurses outside the door. I am at Children’s Hospital.
Let me begin by saying that I would not wish this type of circumstance upon anyone. Ever. I would also like to shout out to all the parents who have a child that has or has had a serious health issue- you’re all heroes and I have the utmost respect for you.
Our journey began the evening of March 10th. I was changing Ellavie into her pajamas on our bed. Out of seemingly nowhere, her limbs went stick straight, her eyes rolled back into her head, and she froze that way for several seconds before her body relaxed and she went back to normal. I brushed it off as odd newborn reflexes and we went on with our bedtime routine.
The following evening I was nursing my sweet girl. I layed her in my lap so I could adjust my shirt as she switched sides. Suddenly, she had a second episode, identical to the one from the night before. It was then that I did the thing you’re not supposed to do.
I googled it.
Everything I read indicated seizures. I called our nurseline and was told that our best option was to go to Children’s Hospital. Tonight. I burst into tears.
Off we went to Children’s. After a period of waiting, Ellavie was examined several times. She looked perfect; but my description of her episodes was concerning to the doctors. They decided it would be best to monitor her overnight to see what could be causing the episodes.
They ordered blood work, a head CT, and an EEG (some sort of electronic brain monitoring), along with a video monitor.
Ellavie was precious. She layed on the bed in her teeny tiny hospital gown, cooing and “talking” and smiling away. She’s the cutest 🙂
Then the hard part. Watching and hearing her get her blood drawn and having an IV inserted was by far the worst thing we have ever experienced. I would rather go through ten more labors with no epidural than have my baby girl feel that pain. (A HUGE thank-you to my husband and mother-in-law, for soothing Ellavie through the process while I cowered in the corner, getting more nauseous by the second from her pain-filled cries).
Luckily, her CT and blood work came back normal. Finally, some relief.
We were admitted to our room, and the EEG and camera were set up. We were able to eat, and baby girl was finally able to get some sleep. David drifted off… And that brings us back to where this post began.
As for me, this mama can’t seem to drift off. I’m writing and praying, instead. Hopefully I’ll be able to get some rest- but for now, I’m trusting in The Lord for a perfect report for the sweetest daughter in the world.
9:36 AM- We saw the neurologist. So far her EEG looks perfectly normal. He would like her to be monitored through the afternoon so that if she has another episode, we can figure out what exactly it is and what could be causing it.
While we await more information, we stand steadfast in the promise that our beautiful daughter is in the Lord’s hands. We believe that she will be released with a clean bill of health as we prayerfully seek God’s comfort in the waiting.
Proverbs 3:5 // Trust in the Lord with all your heart; lean not on your own understanding.
Matthew 19:14 // Jesus said, “Let the little children come to me and do not hinder them, for the kingdom of Heaven belongs to such as these”.
Isaiah 41:10 // Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.
Final update: She has not had another episode and we get to go home! Yay! Unfortunately we still do not know the cause. For now, that’s just fine. We have the number for the neurologist if it does occur again. We are believing that it will not happen. We appreciate your prayers for our family during this time!